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This is an organization devoted to promoting optimum health care for people suffering from genetic disorders. They're full of specific intersexed conditions like Klinefelter's Syndrome, and a page where you can search for related resources by condition.
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A support group for families who have children affected by disorders involving chromosome 22.
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Non-profit voluntary support group for families affected by rare chromosome disorders.
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Informatie over zeldzame chromosomale afwijkingen.
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Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.
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Support for families of children with Distal Trisomy 10q. Family stories, contacts, other information.
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A forum for sharing information, increasing public awareness, and building advocacy for further research for patients diagnosed with Myotonic Dystrophy Type 2.
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Support and encouragement for people with congenital gender variations.
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A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15).
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This is a discussion group about lafora body disease.
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Sites are listed alphabetically by disease/condition.
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Resources, articles, support and general information on the rare disorder, Oto-Palatal-Digital Syndrome.
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A support board for those parents of children born with extra toes/fingers as well as webbing. A place to learn new information and make friends with others
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An online support group for people dealing with Peter's Anomaly.
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The Philadelphia, PA., Internetsupport For invisible/hidden disabilities.
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Support Organization in the United States for Trisomy 18, 13, and other related disorders. Provides literature, conferences, newsletter, chapter information, and international contacts.
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A forum for people who have chromosome abnormalites to show support, give advice and comfort.
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This is a memorial website for Thomas Scott Davidson who died from Anencephaly.
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This site was made in memory of our daughter Abigail Renee, to help other families who have been given a diagnosis of Trisomy 18.
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Lists Trisomy 18, Edwards syndrome memorial site, help making a website, and share a story.
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Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey.
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Support and information for families of children with rare disorders.
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The mission of the European Porphyria Initiative (EPI) is to present an up to date approach to the understanding of porphyria.
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Features a Yahoo! group for family support for individuals caring for others affected by "Alpha Thalassemia Mental Retardation Syndrome (ATR-X).
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An active support site for the parents and families of children with Floating Harbor Syndrome.
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A very active support group that prides itself on helping its members through the good - bad days and posting the latest CMT/HMSN/HNPP research information available on the web.
