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Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder.
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An article about Barth Syndrome with a description, clinical manifestations, etiology, epidemiology, diagnosis, prognosis and management.
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Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
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List of clinical symptoms, history of the condition, current news, and links to support groups.
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