Health, Conditions and Diseases, Nutrition and Metabolism Disorders, Inherited, Mucopolysaccharidoses, Hurler Syndrome

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Hurler Syndrome

5 Sites in Hurler Syndrome

It's me, Micol

An imaginative personal account written by a parent telling the story of a child's experiences growing up with MPS. Originally written in Italian, it has an English equivalent.

http://www.geocities.com/micoladdamo/
Jenna Marie's Page

The story of Jenna Marie who was born with MPS in 1997. Features updates on her condition and highlights of her life.

http://www.geocities.com/heartland/flats/3842/
MedlinePlus Medical Encyclopedia: Hurler syndrome

Information about Mucopolysaccharidosis type I (MPS I), also known as Alpha-L-iduronate deficiency. Outlines the basic facts such as symptoms, treatments, and prognosis.

http://www.nlm.nih.gov/medlineplus/ency/article/001204.htm
Obviously Grace

A mother writes about her experience as a mother of a child who had a form of MPS and died at age eight.

http://www.yoni.com/motherf/grace.shtml
Tyler's Room - Hurler Syndrome

Information on the disease and Tyler's story. Includes an autopsy report.

http://hometown.aol.com/reneeb2/tylerroom.htm?f=fs