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Talks about what the disorder is and treatments being used in clinical trials.
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Lists types, places to chat, and websites.
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Aims to improve the awareness, diagnosis, and treatment of maroteaux-lamy syndrome, and to provide resources that can help improve the lives of those affected by this disease. Sections for patients and caregivers and for the healthcare professional.
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Yahoo message group that offers support to those afflicted with mucopolysaccharide accumulation.
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Describes the various types and looks particularly at behavioral and educational issues. Put together by the psychologist Michael B. Brown, Ph.D.
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Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
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Offers a list of synonyms, a general discussion and further resources.
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Non-profit organanization advocating for families affected by the Mucopolysaccharide diseases. Located in Bangor, Maine, USA.
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Founded to provide information and support to affected individuals and their families.
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A star studded fantasy hockey game and auction, allowing participants to play alongside some of hockey's great alumni, while helping to educate both professionals and the general public about MPS and raise money for research.
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A non-profit organization supporting research for those suffering from Mucopolysaccharidosis, or MPS and their families. Articles, including one on the Ryan's current health status, and links.
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A voluntary support group in the UK which represents children and adults suffering from Mucopolysaccharide and Related Lysosomal Storage Diseases, their families, carers and professionals.
