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Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
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Describes his seizures and surgery.
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Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.
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Offers alternative names, a general discussion and further resources.
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A list of synonyms, a summary and major features of tuberous sclerosis.
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Offers commonly asked questions about this disease.
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Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes information links and Tamara's health updates.
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A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
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An incurable genetic condition that causes tumors to grow in various places in the body.
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US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
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Supporting sufferers, promoting awareness, and seeking the causes and best possible management of Tuberous Sclerosis.
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Developed by the National Institute of Neurological Disorders and Stroke (NINDS).
