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Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
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International support group and resource center for this disease, includes current research.
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Canadian charity supports research into a cure for SMA.
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Organization raising public awareness and funds for research. Features disease fact sheets, a message board, merchandise, and research updates.
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Overview of SMA, its genetics, clinical presentation and testing. It is written by experts in SMA research and genetic testing.
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A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.
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Providing support, information and research news for UK families.
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Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
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A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman.
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A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
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I am two years old and I have SMA2.
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Information on SMA, and the latest updates in research, treatment and funding.
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Dedicated to fighting spinal muscular atrophy by helping fund research for treatment and a cure, and providing support to families affected by SMA Type I.
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A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French.
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Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.
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Sam and Alex Bolton - twins with spinal muscular atrophy. Find information and support for SMA sufferers as well as fund raising efforts.
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Provides detailed medical/genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical.
