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This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
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Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
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Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
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Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.
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Includes key facts and animated slide shows of causes, diagnosis and treatment.
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Provides links to medical and non-medical organizations and people with Duchennes problems.
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Provides support for those with Facio Scapulo Humeral and their carers.
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Clinically-oriented information.
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Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
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Annual race in Pennsylvania sponsored by the Eastern Harley-Davidson Association, to raise funds for the Muscular Dystrophy Association. Includes event and parade schedule, registration information, and photographs from past years.
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Details about Nectar "T", not a cure for MD, but aims to delay it's progress, gaining valuable time until the medical community will solve the problem permanently. Multilingual site.
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Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
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Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
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Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
