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Marfan's patients diary of the diseases events in her life. Includes a list of links.
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Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
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Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease.
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Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.
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A global information center providing links to Organizations around the world.
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Personal site by which describes the pathology and gives a bit of advice.
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This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
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Major resources listed as well as genetic information.
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The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
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Support group in New South Wales, Australia.
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Online chapter from The Merck Manual of Medical Information.
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Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
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Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
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Information about an e-mail mailing list. Also includes links to other online support groups.
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Irish charity with information on fund raising activities and the condition.
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Providing accurate and timely information about the disorder to patients, family members and physicians.
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From the National Institutes of Health.
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The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
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Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
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O stowarzyszeniu, informacje o zespole Marfana, rehabilitacji, adresy innych towarzystw.
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Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
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A history of the pharoah along with theories applied to what he may have had, including Marfan's.
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What the disease is and includes the impacts on daily life.
