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Personal site of a patient with vascular type EDS. Moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the problem before it was too late! Pictures included.
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Hypermobility can be a problem for both massage therapists and clients, AMTA discusses solutions therapists can readily employ.
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Symptoms, diagnosis and treatment of the condition.
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If you or a family member with EDS needs surgery, read this and share it with your doctor.
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Research organization for genetic connective tissue disorders.
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Information regarding laboratory testing for different EDS types. Also includes limited information on Tenascin-X Deficiency Syndrome, a recently discovered disorder that shares symptoms with EDS.
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Some EDS patients have obtained excellent results with prolotherapy treatments.
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Learn what it's like to live with EDS for this woman and her children by following her online journal.
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The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide.
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Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.
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A Syrian patient gives a personal plea for better medical support and research.
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American nation-wide support and information to those affected by EDS. Includes many articles, message boards, chat room, information for medical professionals, and regional support groups.
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Support group for individuals and families from Michigan and Indiana who have Ehlers-Danlos Syndrome (EDS), a genetic connective-tissue disorder. Meetings are held in South Bend, Indiana.
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A series of short articles regarding genetics, diagnosis, treatment, and coping for people with EDS from the University of Washington's Orthopedics and Sports Medicine Department.
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Doctor-produced information on the different types of EDS, including Tenascin-X Deficiency; treatments, and pregnancy considerations.
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Includes information for patients and doctors, plus links.
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Local Philadelphia, PA support for EDS and connective tissue disorders, also offers a Service Guide for Invisible/Hidden Disabilities.
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Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are treated.
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Expands on NORD's information about EDS, includes great detail on symptoms and cross-over of types.
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This is a moderated discussion board for Hypermobility Syndrome, Marfan, and Ehlers-Danlos. Includes personal experiences, traditional and alternative treatment, and pain management tips from fellow patients.
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Serves as a window to message boards, medical articles, support groups, and other resources for people with hypermobility disorders.
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Information about joint hypermobility (Ehlers-Danlos Syndrome), fibromyalgia and chronic fatigue syndrome.
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Information about EDS from the National Organization for Rare Disorders.
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EDS causes many dental concerns that you, your dentist, and your medical team must be aware of. This excellent article covers the problems and solutions in detail.
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Explores environmental and nutritional links in healing connective tissue disorders (Ehlers-Danlos, HMS, Marfans, and others)
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Working together to provide assistance, support and resources for people living with this rare genetic disorder.
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HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, and message boards.
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The purpose of the association is to support members, to inform them and their families, physicians, dentists, other nursing staff and the general public about EDS concerning symptoms and consequences. Find contact details and links.
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Article by two dermatologists covers many patient concerns regarding skin, joints, blood vessels. Includes potential treatments.
