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Gives support to anyone affected by Osteogenesis Imperfecta, a rare genetic condition which leads to severe and painful fractures.
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US organization. Online grant and fellowship applications with news about recent and upcoming events.
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Fact sheets from the National Institutes of Health.
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Bietet in diversen Sprachen grundlegende Informationen und weiterführende Links sowie eine Art Patientenpass, der vor allem Behandler auf wichtige Dinge beim Umgang mit dem Erkrankten aufmerksam machen soll. Weitere Informationen über die Aktivitäten der Organisation sind in englischer Sprache verfügbar.
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Supports and encourages medical research and disseminates information to patients, their families, and medical professionals
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My name is Carone Sturm, I live in Fairbanks Alaska, and my son, Jojo, has osteogenesis imperfecta.
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Reviews the possible role of nutrition in this disorder. Questions whether it is solely a genetic condition.
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Bisphosphonate FAQ, bone density, and other information for families dealing with OI.
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For the discussion of any issues relating to OI. Open to both professionals and families.
