-
USA-based non-profit association of families of children with 4p-, offering phone support, newsletters, national biannual gathering and regional meetings.
-
Australian Wolf-Hirschhorn Syndrome Support Group, with pictures of the webmaster's daughter Bethany Louise, and reports from the biennial conference held in odd-numbered years.
-
Includes very detailed month-by-month status reports of a WHS boy born April 2000.
-
Pictures of Brianna, a 4p-WHS girl born November 2000.
-
Features a list of reported case studies and symptoms, genetic information, and important references.
-
Includes a beginners' guide to the underlying genetic cause. Managed by Mrs C. V. Hilder, mother of a WHS son.
-
German WHS Support Group, with information for parents and medical professionals. Includes a very list of symptoms.
-
Detailed information on differential diagnosis, genetics, likely clinical history, and symptoms.
|
|
