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Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
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Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.
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Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation.
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Personal site about a child with this disorder. Provides details about the condition.
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Information, including the causes, different forms, the inheritance and how the disorder progresses.
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Describes the disorder for the benefit of parents, lists characteristics of children with the disorder, and tells what to expect.
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Canadian based charitable group founded by the parents of Elisa Linton.
