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Information about the organization that offers residential care for people with Prader-Willi Syndrome.
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A residential facility, located on Cape Cod, for the treatment of adults and children with Prader-Willi Syndrome. Includes details about diet, medical news, the programs, and consulting services.
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A non-profit, residential treatment center for the treatment of adults and children with Prader-Willi Syndrome. Find program details, a photo gallery, and contact information. Located on Cape Cod in Brewster, Massachusetts.
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Designed to provide useful background on Prader-Willi Syndrome (PWS) for parents and to organize medical information that may be helpful for future research directions.
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Represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population.
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Characteristics include hypotonia, insatiable appetite, obesity if food intake is uncontrolled, hypogonadism and incomplete sexual development, developmental delays, variable degrees of mental retardation or functional retardation, short stature (adult), small hands and feet, mild dysmorphology, and behavior problems which can be severe.
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A non-profit group of volunteer families, friends and researchers aiming to raise funds for research into finding treatments.
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Includes news, important dates, fund raising, maps and links.
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Information and resources about this chromosomal disorder.
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Diagnostic assessment, selected treatment services and opportunities to participate in research from the Yale University Child Study Center.
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