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A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them.
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Creating a virtual research center in Israel to find a cure.
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Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's.
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Information on this disease, medical aspects, education, references, contacts and what's new in Australia
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Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation.
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Funds investigation of the most common inherited form of mental impairment and developmental disability, and provides newsletters and discussion groups, invites applications for research grants, and explains how to donate or join.
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A Policy Statement from the American College of Medical Genetics.
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One family's account of raising 3 children with Fragile X.
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A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources.
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Support group for Family's who are dealing with Fragile X Syndrome.
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Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations.
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Features information about the disease, its treatment, and inheritance.
